Ethan and Mason Hurd
Four-year old Mason and 14-year-old Ethan didn’t start life as brothers, but a common bond forever links them in a
special way. They share a rare genetic disorder called Prader-Willi Syndrome.
Weak muscles, sensory issues, development and cognitive delays, behavioral problems and chronic hunger are just some of the problems related to Prader-Willi Syndrome. But the boys have wonderful parents, Tessie and Grant, who see past it.
“Despite everything, Mason knows how to put a smile on everyone’s face. He just makes the world a better place. We’re so grateful for him,” they say. “In 2017, we learned of Ethan through the Prader-Willi Syndrome Association (USA). After 14 long months of waiting, Ethan joined us in July 2018. We love Ethan and feel so blessed that he’s part of our family.”
Grant and Tessie say, “Making the choice to adopt Ethan was an easy one. Knowing that if we ever needed anything,
Children’s Miracle Network Hospitals would be there for us made it even easier.”
With all the boys’ health issues, there are numerous healthcare visits to Gundersen’s Pediatric Specialties and other
departments. This means many miles travelled and long days at the clinic. CMN Hospitals provided the family with meal
vouchers and gas cards and helped with special equipment such as a car seat with temperature-regulating fabric for
Mason whose body can’t self-adjust properly.
“Having CMN Hospitals there to help is a huge stress reliever,” the parents say. “When you wish you could do more for
your child or get the equipment they need, CMN Hospitals is there to help with almost anything you need.”
Like other brothers, Ethan and Mason have common interests like basketball, reading books, going to the park and
playing with their toys. They love their parents and their kid brother, Maverick. But each is his own person, too. They face their own struggles, but they do this with their own brand of courage and, of course, with loving support from their family and each other.